Well, yes, every day is an adventure at our house, but today was a special adventure....another LONG day at Mayo Clinic. Christian and Charlie had their 1 year NICU Clinic appointments today and we were told to expect to be there for 4 hours. So, at 7:45 we checked in at the appropriate desk....wait. Stop. Back up a little bit! Our adventure really started in the parking ramp when the boys and I arrived at the clinic.
We arrived a few minutes early hoping I would be able to stop and get a cup of coffee since I didn't get a chance to make and take any. So, I get out of the truck and open the back to get the double stroller out....NO STROLLER. Okay, I run through my mind the last time we used it- Saturday. I ran through our schedule since Saturday- stroller should be in there- but it's not. Well this will be interesting without a stroller! So I call Tyler to ask him to come on down, you're the next contestant on "Help Me Lug These Babies Around The Clinic All Day Since I Don't Have A Stroller!" And being the great husband he is, he came to my rescue. Only to find out HE was the one who took the stroller OUT of the truck and forgot to replace it. Up until this point I had convinced myself that someone must have stolen it out of the truck because we usually just leave it in there! Okay, he won't live this one down for awhile. And, being the wonderful husband he is, he offered to drive back to Byron to get me the stroller since he wasn't able to stay with me all morning :)
So, NOW the boys and I check in to their appointment, get undressed for weight checks (well the boys did, I didn't). Have I ever mentioned that my boys are rockstars? I haven't? In awhile? Well, they are. Trust me on this one. Christian weighs 16lbs 9oz and is 28.2in. long and Charlie is 13lbs. 2oz and 26in. long. Way to grow boys! Throughout the morning the boys were seen by a Neurologist, Neonatologist, PT/OT, Nutritionist, and a social worker. And let me tell you, the boys were marvelous through all of this. Real troopers. Developmentally Christian tested at a 9-12 month level which is great! And Charlie tested at a 9 month level which is also great! Testing at a 9 month level is right where they should be since they are 12 months chronological age, 9 months corrected.
Other things they are looking at are possibilities of why Charlie does not sleep, like EVER. He gets up several times a night still. They sent us home with an oxygen monitor thinking that maybe he has sleep apnea. We were to monitor his oxygen levels for a night to see if his levels dropped at all. We did this on Tuesday night and that adventure in itself could use it's own post. Other possibility: restless leg syndrome (really? In a baby? Yeah, only my child), low iron which can interfere with ability to sleep. So after picking up his oxygen monitor, Charlie also had a blood test to check his iron levels. Low and behold....the level is low. Charlie will now be on iron supplements once again.
For Christian, the doctor was concerned about his head. Several aspects such as the size (it's large), his soft spot is still open (but so is Charlie's) and the bones in his skull have not yet completely fused together as they should have by now. So in addition to equipment pick-up and a blood draw we added on a head scan as well. A half day at the clinic very suddenly turned in to an ENTIRE day at the clinic. But since we have rock stars for boys they were great the whole day.
Now we're going in to Thursday and we still have no results from any of the tests with the exception of the iron level in Charlie since I could look that test up online. I'm hoping tomorrow I'll hear from the doctor, and if not, they'll be hearing from me.
Way to be rock stars Christian and Charlie! Keep growing!!
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